Although the Neuro-QOL measures have been tested in two large calibration studies with disease-based and community dwelling samples, the calibrated short forms are currently being administered in a multi-site clinical validation study. Until this study has been completed and the Neuro-QOL measures are released into the public domain, investigators or groups wishing to use them in their current or future study may do so if they agree to provide the Neuro-QOL study team with item-level data derived from their respective study, which will be used to evaluate the performance of Neuro-QOL items in different neurological conditions and trials.

Please contact the Neuro-QOL study coordinator, Vitali Ustsinovich (v-ustsinovich@northwestern.edu ) if you would like to learn more about this.